Minutes

Tuesday 21 May 2019

Updates:- We received a thank you e-mail from Phil Corrigan.  She had enjoyed being with us, thanked us for the flowers, wished us well and said carry on fighting.

We are invited to a preview of the Exhibition Many Happy Returns, 70 years of memories of the NHS. Thursday 13th June @Room 700 Leeds Central Library 4 – 6 pm.  The Exhibition runs until July 5th

KONP have booked a stall at the Kirkstall Festival Saturday July 13. Any help we can give will be most welcome. LHA will NOT be having a stall.

Conference, Social Care, Saturday June 29 at St Georges. We did say we would like to help.  I will forward details when I have them from Gilda. Gilda forwarded an invitation to join discussion groups in Leeds June 1st. Bronwen & Beatrice agreed, if there are places still available, to attend the group in Pudsey concentrating on the attacks on our public services.  I did e-mail the invitation to all members.

Shop Mobility:  progress is so slow you can’t help wondering if it will ever be restored BUT there are people trying very hard to move the issue on—–The Disability Hub, The Older Peoples Forum.  Lucy Graham at Forum Central plus Cllr Kevin Ritchie and representing the Council Sinead Cregan Commissioning Programme Leader for the Council and  Bairbra McKendrick  Unison Access Officer After significant delay talks are ongoing with the William Merritt Centre and the Merrion Centre. Leeds is not the best city for the disabled. We can only hope that this time something good will happen.

Home Care Networks.  The document was e-mailed to all members and copies sent to all 8 Leeds MPs.  As yet no response.

Unison retired members group has been alerted to debt collectors being used to collect arears of social care charges.  Asked that a letter be sent to Judith Blake.

Jeremy sent a message to say that at last he has received a letter from Judith Blake highlighting the costs of bringing services back in house.  Having taken

Expert advice he will reply.  Also, he is meeting with UNISON officers to discuss the failure of Leeds City Council to implement The Ethical Care Charter

STOP PRESS Friday May 24

Meanwhile, the Financial Time reports on an existing digital healthcare scheme. The app, GP at Hand, has proved so popular that it is straining the finances of the NHS body which runs it.

Since 2017 it has operated through the Hammersmith and Fulham clinical commissioning group – but is available to people even if they do not live in the area. That has created a £22m funding gap.

Next meeting Tuesday June 18

To be discussed:

Is there a future for Leeds Hospital Alert; if yes how do we progress with so few members and increasing age?

Leeds Hospital Alert minutes March 2019

Care Homes warning in the Guardian if Interserve go into administration on Friday

Outsourcing: – full discussion postponed until next time but the report from the New Economic Foundation has been e -mailed to everyone. Also, Jenny Shepherd and 999 NHS are keeping up the pressure.  The sheer volume of contracts with Interserve as, it was with Carillion; highlights the dangers of current policy. (update cf. the Guardian Saturday March 16)

NHS 10 Year Plan: – many good things in the plan but a glaring omission is services for children. The plan has scant regard for how it will relate to schools.  Mental health support teams will work in schools but will be managed by clinical commissioning staff.  The conclusion of the first Children’s Commissioner for England is that we cannot continue to fail so many children.  Beatrice to contact Lisa Mulherin.

No deal Brexit:  letter sent to Theresa May signed by the great and the good of the NHS.

Alex Sobel is continuing to ask questions in Parliament about insulin supplies.

Digital services in the NHS: – patients will have the right to online and video consultations by April 2021. For further information see Specific Improvements – primary care on line. 8 specific improvements in total. An app a day will keep the doctor away. 25 % of doctor’s appointments will be via app by July 2019.  The accent is to be on DIY healthcare.

Already experimenting with robot doctors!!

IN addition, by 2023 – 2024 an army of social prescribers will be handling approximately 900,000 patient appointments a year.

NHS agreement to extending the Babylon service outside of London to Birmingham is cause for concern.  Believed that Leeds will be its next target.  Richard Vautrey chair of the BMA’s GP committee said ‘ We are incredibly disappointed with this decision, which is not only premature but flies in the face of place based care delivered by practices embedded in local communities, which the recent changes in the GP contract are committed to deliver’   Are patients going to be warned that by signing up to Babylon they will automatically lose their local GP service.  Who is going to monitor Babylon?

N.B. it is estimated 90,000 people in Leeds have no internet service

Questions are being asked about the role of OPTUM which is a subsidiary of United Health (another big American Company) Leeds CCG doesn’t have any contracts with them but NHS England has a contract with them for 4 sites across England to develop staff capability in the use of data to better support front line teams and planners.

Yet another new name.  This time Accountable integrated Care Partnership. WE must monitor developments.

Leeds Hospital Alert Minutes

pdf version LHA Feb 19

We have received a fun thank you card from Nicola.

Bronwen received a reply from Simon Stevens in response to the letter expressing our concerns concerning further privatisation of the NHS and expressing our support for changes to the Lansley Act.

Alex Sobel asked at PM Question Time about the supply of insulin post Brexit.  It is all in hand he was told but we must keep a sharp eye on what happens next.

Concerns about the lack of staff in the NHS causing real problems in all services.

Must keep track of NHS England’s demand for increased use of electronic consultations and services.  We especially need to know what happens for those who do not have internet access.  Many GPs unhappy about recent developments. They could be dangerous.

Social Care Report:  Bronwen, Sylvia, Jeremy, Gilda attended the Social Care meeting at the Central Library. Time was spent looking at the Preston Model, the Foundation Economy Unit at Manchester University, the Sheffield Civic Society model.  All concerned about the cost of outsourcing, its effect on budgets and on patient services.  Good contact was made with Charles Dannreuther at Leeds University.  He would like to know more about LHA.  Sylvia to contact him. We need to know how to move the Council on from their current entrenched position.  Ought we to contact the Centre for Disability Studies at the University?  There will probably be a Northern Conference as follow up to the Birmingham Conference.  Gilda will keep us up to date.

Community Mental Health Services.  Sylvia gave a brief report. The Service is returning to working in teams with the aim of keeping patients out of hospital and in their own homes.  All day units have been closed including Malham House. Intensive home care treatments go live March25. There will be a transition period with re-design of homecare teams.  There will be an on line questionnaire for service users but not for their carers. Further report at our next meeting.

Leeds CCG would like your views on the proposal for urgent treatment centres in Leeds.  Closing date for feedback 15 April 2019.  Contact the CCG on 011 3 843 5470 on leedsccg.comms@nhs.net

KONP: Urgent Care- 111 Service- to be provided by Yorkshire Ambulance Service.  New targets from April.  Could be put through straight to a GP.

Vascular services.  Lack of trained staff means either Huddersfield or Bradford will lose their department.  Leeds working to full capacity.

Combating loneliness.  Aim to rekindle community spirit.  See the e-mail forwarded   from John.  Jan’s cautionary tale about   the threat to her tai chi class not very encouraging. To discuss at the next Yorkshire meeting the possibility of a Northern Conference probably in June.

There will be a workshop at SUMMAT March 9 in Notre Dame Sixth Form College

NHS March 30th March.  Please help with distributing postcards as widely as possible. Cards available from Gilda.

Next meeting Tuesday March 12 Muir Court 7.30

April 9 come to say thank you to Phil Corrigan before she retires in July.  Would be good to have as many members as possible at this meeting.

Briefing for Rachel Reeves MP

pdf version

Young people’s mental health is a ‘worsening crisis’. 

Action is needed writes Mary O’Hara in The Guardian 31/7/2018 ‘Whatever the language deployed to describe the scale of mental health challenges facing Britain’s young people, it has to be addressed immediately.’

NHS figures published last month revealed that almost 400,000 children and young people aged 18 and under are in contact with the health service for mental health problems. According to the figures, the number of “active referrals” by GPs in April was a third higher than the same period two years prior. Those seeking help for conditions such as depression and anxiety showed a sharp increase….

Demand for help is up, but services are diminishing…. The revelation in November 2017 that two-thirds of children referred for specialist mental healthcare are not receiving treatment ………………………………………………………………………………………………………….

Current situation in Leeds:  Children and Adolescent Mental Health (CAMHS) are provided by the Leeds Community Healthcare NHS Trust says the CAMHS website. CAMHS is a specialist mental health service for children and young people. Staff are highly trained in a range of different assessment techniques and evidence-based therapies. Staff work closely in teams so that they can offer services tailored to the needs of children, young people and families.

For a very small number of young people, highly intensive assessment and treatment packages are needed. Leeds CAMHS has both intensive outreach and inpatient services. Little Woodhouse Hall is the adolescent inpatient unit in Leeds. It is for young people up to the age of 18. There are 8 residential places there but there is are no Psychiatric Intensive Care Unit (PICU) in Leeds. Some years ago, 16 and 17-year-olds even 15-year-olds with challenging behaviours used to be put on adult mental health in-patient wards but we campaigned against that.

More recently young people are sent to Out of Area Treatments (OATs), mainly to the Cheadle Royal Priory, a private hospital in Cheadle, Greater Manchester or to an NHS adolescent unit at Middlesbrough if they need to be in a PICU, both of which are about 50 miles away from Leeds. This distance must put great strain and cost on families, as well as create difficulties in continuity of treatment and care planning.

Plans for new £13m CAMHS unit to be shared with public

Leeds Community Healthcare NHS Trust is inviting the public to a drop-in information session where proposals for a new inpatient Child and Adolescent Mental Health Service (CAMHS) unit will be unveiled.

The proposed new unit will provide crucial specialist support to young people with mental health problems on the St Mary’s Hospital site in Armley.

The drop-in event is to be held between 3.30pm and 7pm on Thursday 13 September in the Class Room, Holly House, St Mary’s Hospital, Green Hill Rd, Leeds, LS12 3QE. Free parking, including disabled parking, is available directly outside the Holly House building.

It is an opportunity for people to view and comment on plans prior to submission of a planning application. Service, construction and design representatives will be on hand to answer any questions.

Earlier this month it was confirmed that Interserve Construction Limited had been appointed as the Trust’s construction partner for development of the prospective £13m unit – which got the go ahead following a successful bid for NHS funding led by Leeds Community Healthcare.

Thea Stein, Leeds Community Healthcare NHS Trust Chief Executive, said: “It is very important to the Trust that the voice of young people, families, staff and the local community has a strong presence in the development of the new unit and we will continue to work together to make sure we get it right.”

If you can’t attend the event but would like further information, or if you have any special requirements, please contact Samantha Hirst, Communications and Engagement Manager on 0113 843 1204 or email Samantha.Hirst2@nhs.net

You can also keep up-to-date with the latest on the project by visiting: https://www.leedscommunityhealthcare.nhs.uk/

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What is proposed. This is fantastic news for the development of children’s and young people’s mental health services in West Yorkshire, at last. The new residential unit, proposed for the Leeds and York Partnership Trust’s site, but run by the Leeds Community Healthcare Trust and funded by £13 million from NHS England, will have 18 residential places and 4 in a PICU, totaling 22 for West Yorkshire. It is to be built on part of the St Mary’s Hospital site on Greenhill Road in Armley which has mainly been cleared of services in recent years. It is likely that the old hospital in the centre of the site which is a listed building will be sold for apartments, perhaps for hospital staff. Unfortunately, although space has been provided there is no funding for a crisis assessment unit for children and young people.

I attended the public drop-in for the new in-patient CAMHS unit and met the architects and various professionals and was impressed by the building, but I had some concerns about it being institutional, overlooking the cemetery, and isolated from the local community. Young patients had been actively involved with planning the interior and facilities of the building.

Opportunities for the local community

  1. This must be a good opportunity for employment in the development of jobs in both building and running the new unit. How can we promote this to ensure local people are trained to take up work?
  2. Young people and their families, and workers, are likely to travel to the unit from across the north of England, with consequent opportunities for the improvement of transport to St Mary’s Hospital. What financial support will be available to carers for traveling?
  3. The multinational out-sourcing company, Interserve, has been chosen to both build the unit and provide the staff to run it. I am concerned that Interserve appears to have financial difficulties, reminiscent of Carillion.

Interserve shares dive on rising concerns over future

Simon Jack, Business editor @BBCSimonJack 13/11/2018

“A former big shareholder in construction and facilities management company Interserve has told the BBC he is doubtful the firm can survive. Shares hit a 30-year low on Monday and are down a further 15% on Tuesday. “We could be looking at another Carillion. I don’t see how they can raise the £500m or so needed,” he said. However, two different sources close to the company denied the firm was close to bankruptcy and said it was set to ask new investors for more capital. Interserve, a major UK government contractor, sells services, including probation, cleaning and healthcare, and is involved in construction projects. The company is making more than £100m in cash and although the construction business has got a few problems, the core facilities management business is doing well, according to people who attended a recent management meeting. One source added that the sharp falls in Interserve’s share price reflected the growing realisation that existing investors will get a worse deal than those prepared to commit fresh cash.”

  1. The young people who are admitted to the unit will be some of the most distressed; experiencing for example, initial onset of schizophrenia, severe eating disorders and be at great risk of suicide and self-harm. I propose a local community centre, preferably on the hospital site which does not have a workers’ café anymore.  HMP Leeds has the Jigsaw voluntary organization on-site to welcome families at a distressing time, with activities for adults and children and food and drink. This might be a useful model.

14/11/2018

Leeds Hospital Alert responds to LGI Consultation

New Leeds Hospital

Several members of Leeds Hospital Alert attended the drop-in sessions to see the plans for the new hospital on the LGI site. These are our concerns: –
The cost —- there is still a huge gap between the money promised/secured and the amount needed.

Wonder if there is sufficient expertise available to ensure that LTHT doesn’t suffer the same costs/penalties of PFI.

Will there be sufficient safeguards to ensure that obtaining money from private sources doesn’t mean further privatisation within the Trust? Far too much NHS money is going into private hands instead of patient and staff care.

The size of the buildings and the site itself presents problems for many patients especially those arriving by public transport or have problems walking or are simply not well. Are you negotiating with the transport authority or considering the use of a hopper bus?

There can be serious problems too for wheelchair users especially when they are not allowed to bring their carer with them in the ambulance. Will there be an efficient porter service with wheelchairs at the point of access.

Can we assume that everywhere will have wheelchair and disabled access plus help for those hard of hearing?
Assume you will negotiate with and accept advice from the Department of Disabled Studies at the University

Members with nursing experience question the use of a day ward for children needing blood transfusions or chemo. There can be 7 or 8 at any one time on the ward. To be told they could be transferred to another ward isn’t considered to be satisfactory. Certainly not the best treatment of young people.

We were assured that there would be no reduction in beds but this fails to take into account a rising population, referrals from another hospital and whether these have been taken into account in modelling bed numbers. Rising demand must necessitate more beds not just maintaining the current number.

Bringing together all maternity services on to one site creates a very large unit. Is this best practice? We would recommend a public consultation a.s.a.p.

Very concerned about the proposed use of apps. Have you considered just how many people will not have an app? Not everyone has an i-phone or indeed a computer. Has any assessment been undertaken to discover just how many mistakes already happen with the computer services at LTHT? How many patients are blamed for faults in the system?

We can certainly give you some examples. What would you do in circumstances such as 02 closing down completely for 36 (?) hours? How would you contact all the patients who use that provider? What fall back procedures will you have in place?

Substantial buildings are to be put up for sale. Is there sufficient expertise in the Trust to organise these sales so that a fair price is paid with water tight safeguards? In the past this has been questionable.

What happens next if you don’t succeed in raising sufficient funding?

Will just part of the plan be implemented?